www.xueyou.org
血友之家-血友病官方网站
北京血友之家罕见病关爱中心是开展血友病患者及其家庭在教育、医疗、心理关怀、就业方面的救助活动；开展血友病知识宣传教育等活动；组织医学专家、学者、病人等开展血友病咨询服务。
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